Humanistic burden considers the impact of an illness on a patient's health-related quality of life (HRQoL), activities of daily living (ADL), caregiver health, and caregiver QoL. Humanistic burden also conside...
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Τετάρτη 22 Νοεμβρίου 2017
The humanistic burden of Pompe disease: are there still unmet needs? A systematic review
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